When Loneliness Hurts More: The Agony of Chronic Pain Isolation

When you think of chronic pain, the first thing that comes to mind is the unrelenting physical torment that you endure. The agony that seeps into every crevice of life, making even the most mundane tasks feel like insurmountable challenges. But there’s another side to it that often goes unspoken, and that is the isolation that accompanies it. It’s a truth that many people living with chronic pain know all too well: the loneliness can be just as excruciating, if not more so, than the pain itself. I should know. I experienced this first hand and I was crippled by it for over 20 years.

It is hard to wake up every day, knowing that your body will betray you in ways that no one else can truly comprehend. As you struggle to get out of bed, you realize that another day of isolation stretches out before you. Friends and family may try to understand, but they can’t truly grasp the depths of your experience. Sometimes, they are not as supportive. They may invalidate your experience or unintentionally make you feel like a burden. It’s a vicious cycle that can push you to the darkest corners of your mind, fighting the echoes of a persuasive yet dangerous voice. I’ve heard it. I’ve fought it. I’ve given in at times. And learned to live with it.

Chronic pain can be a silent thief, robbing you of your independence and self-worth. I know how it feels when you are no longer able to work or participate in activities you once enjoyed. It’s a cruel irony: as your need for connection and support increases, your ability to engage with others or even relate to them, diminishes. The isolation that results from this can lead to feelings of guilt, shame, and self-doubt. You start to question your value as a person. You start to question your place in this world. You wonder if it is ever going to get better. You dread having to live this way forever and you use every ounce of energy to fight the inevitable. Eventually, you struggle to recognize yourself, and feel like a ghost of the person you used to be. 

But here’s the thing: it’s okay to feel this way. It’s okay to feel angry, frustrated, helpless, trapped and utterly exhausted. These emotions are valid and natural responses to the immense challenges you face. And it’s important to acknowledge that there is no “right” way to cope with chronic pain and the isolation it brings. Everyone’s journey is unique, and you are not alone in this battle.

I won’t say there is strength in vulnerability. Or that everything you’ve experienced makes you who you are today. Let’s be honest, we all hate hearing that. Given a choice, we’d go back and live that life without pain and be someone completely different. 

I can tell you that it is ok to accept your reality and admit how it impacts you. It can be a powerful first step to healing and learning how to manage life with pain. Write it down in a journal, or on water, or sand, or speak the words out loud. Admit it to someone you love, or the person in your mirror, your dog, or even a picture of childhood you. I feel a wave of relief every time I do this. And yes, I do it multiple times a day, every single day. Acceptance doesn’t come easy. It needs practice. 

I also felt a renewed compassion for self, when I found online communities with thousands of others navigating similar experiences. Connecting with people who truly understand your struggles, who can validate your feelings, and who can offer insights and advice completely changes how you experience your pain. It may also give you the strength and inspiration you need to embrace it. Eventually you realize that your worth as a person is not defined by your pain.

Chronic pain may be an unwelcome companion, but it doesn’t have to be a solitary one. I started ChronicallyMeh to share my story, seek support when I needed it, and also for others like me to know they are not alone – so you know you are not alone. 

Anytime you feel alone, please reach out. DM me on Instagram, or comment on a post, or have a chat with some of your favorite advocates, or join a support group. Share your story, or listen to someone else’s. Do whatever it takes to help you feel supported, because that is the only way to overcome the agony. And when you do, trust me on this, the world changes for you.

A Gentle Reminder: You Are Not at Fault for Your Chronic Illness

Hey! I just want you to know that you are not at fault for your chronic illness.

I know. It might sound obvious, but when you’re living with a chronic condition, it can be all too easy to slip into a pattern of self-blame and guilt. We often ask ourselves questions like, “Did I do something to cause this?” or “Is there something wrong with me?” But here’s the thing: chronic illnesses are complex, multifaceted, and often downright mysterious. There’s rarely a single, identifiable cause, and it’s crucial to remember that you didn’t choose this path.

Why do we blame ourselves? 

We live in a society that tends to oversimplify health and wellness. We’re bombarded with messages that tell us if we just eat the right foods, exercise enough, and manage our stress, we’ll be healthy and happy. And while there’s undoubtedly some truth to that, it’s far from the whole story. Our bodies are intricate and delicate systems, and sometimes, things go awry for reasons we can’t control.

Everybody experiences chronic illness differently. You and I could both have migraine. You might eat right, sleep right, take pills on time, exercise and still end up in the ER a couple of times a month, whereas I might be doing all the ‘wrong things’ and popping an Advil for the pain (not true but you get the point. At the end of it, you can relate when I talk about sensitivity, losing out on life, fatigue, insomnia, lack of focus, difficult in making decisions, and keeping our emotions in check. So you could be doing everything right, and still feel terrible. 

What if there is a solution?

Something we don’t realize is that it can be oddly comforting to think that we have some control over our situation. If we can pinpoint something we did “wrong,” then maybe we can “fix” it and make the pain go away. But in reality, chronic illness doesn’t work that way. It’s not as simple as flipping a switch or following a one-size-fits-all formula.

It is human to want to find solutions for all problems but sometimes it is that very nature that creates more trouble. When anybody has a diagnosis, the focus turns to ‘I want to get better’. Chronic conditions don’t work that way. Sometimes pills work, and sometimes they don’t. Your body becomes resistant. Sometimes, it gets worse with time. Sometimes you need to live the rest of life on medication. Sometimes, you need surgery. Sometimes, you need to be hospitalized. Sometimes you need rehabilitation. Stop trying to ‘fix’ it, and start doing things that will eventually help you ‘live with it’.

I’m not saying that lifestyle choices and self-care aren’t essential parts of managing chronic illness. They absolutely are. But they’re not the whole story, and they’re definitely not something you should be using to beat yourself up. Remember that you’re doing the best you can with the cards you’ve been dealt, and that’s more than enough.

Self-blaming can be harmful

I talk about the mental health impact of chronic illness here on the website. It all starts with blame. We are born a certain way (genes and everything). Sometimes things just happen. You can change the color of your eyes with lenses and get surgery to stand taller, but there is only so much you can do to change who you really are (DNA-wise). If I have a gene that is triggered, there is very little I can do to ‘fix’ it. There is very little I can do to avoid ever triggering it.

Hear it from me again. You are not to blame. It is never something you did. This kind of pressure creates so much stress and eventually leads to depression, anxiety and other mental health issues, which in turn flood your body with stress hormones and worsen the disease. 

How to break free from the cycle of self-blame?

People could say a thousand things. They are not living with this condition. You are. You don’t have to avoid this or that, or do yoga, or try Tylenol, or do that thing that supposedly ‘cured’ someone else. It’s often societal pressure and conditioning that fuels self-blame. Here are some things that could help.

  1. Self-compassion can be a powerful tool. Be kind and gentle with yourself, acknowledging that you’re doing your best and that your illness is not your fault. Surround yourself with supportive people who understand your journey and can remind you of your strength and resilience. 
  2. Give yourself permission to do whatever helps you. If that’s lying in bed all day, that’s fine. If that means you don’t wear pants, that’s fine. If you need to eat comfort food, that’s fine. If you need a bite of chocolate just to indulge a little, that is ok too. As long as you drink enough water, and eat something wholesome through the day, you are free to do whatever makes you feel comfortable. 
  3. Learn as much as you can about your chronic illness and the various factors that might contribute to it. The more you understand the complexity of your condition, the less likely you are to fall into the trap of oversimplifying and blaming yourself.
  4. Consider talking to a therapist or joining a support group. Sometimes, simply sharing your feelings and experiences with others who’ve been there can be incredibly validating and healing. It’s a reminder that you’re not alone in your struggles, and that your feelings of guilt and self-blame are not unique.

When you shower yourself with self-love and self-compassion, your brain begins to focus on healing the body or giving the body enough strength to get through this. I’m saying it one more time, it is not your fault.

My Honest Thoughts on Cefaly: Can It Zap Away Your Pain?

As someone who’s lived with Migraine for a long, long, long time, I’ve tried countless remedies and treatments to alleviate my pain. From over-the-counter medications to herbal teas and everything in between, I’ve spent years searching for that elusive solution. So, when I first heard about Cefaly – a nifty little gadget designed to prevent and treat Migraine – I was equal parts skeptical and hopeful. Today, I want to share my honest, detailed, and (hopefully) fun review of this fascinating device.

First Impressions

When I unboxed my Cefaly for the first time (and this was the OG Cefaly dual), I was intrigued by the whole vintage design. It almost felt like something the Jetsons would use. Honestly, I loved it. It felt like I was about to embark on a sci-fi adventure! The device itself is lightweight and unobtrusive, which I appreciated, as I didn’t want to feel weighed down while using it. The instructions were clear and easy to follow, which was a relief for my already throbbing head.

Getting Started

Setting up the Cefaly was surprisingly simple. All I had to do was apply the electrode to my forehead, making sure it was properly aligned, and then attach the device. I’ll admit, I felt a little like a cyborg with it on, but in a cool, “I’m-about-to-conquer-my-pain” kind of way. Cefaly Dual versions come with two modes: Acute and Preventive. The acute mode runs for 60 minutes and the preventive for 20 minutes. They recommend using both modes, especially the preventive as it is said to make a significant difference in Migraine frequency and intensity.

The First Session

The moment of truth arrived when I pressed the button to begin my first session. As the gentle tingling sensation began, I couldn’t help but feel both intrigued and slightly nervous. But within minutes, I was pleasantly surprised. The sensation was oddly soothing, like a gentle head massage, and I found myself feeling more relaxed than I had in days. I could go up to full intensity, and it felt like a thousand mini-hands massaging my head on the inside. I was left with some residual buzzing on my scalp which wore off after an hour. 

The Results

Over the next few weeks, I continued to use the Cefaly as directed. While it didn’t completely eliminate my pain, I did notice a significant reduction in the intensity of my Migraine attacks. For the first time in years, I felt like I had some control over my pain, and that was an incredible feeling. And, I could find that relief while in bed, with ice pack on, and no lights.

Latest Version

I have the new Cefaly Connected now. And it has a very futuristic design compared to the OG. It is also Bluetooth enabled, and connects to CeCe Migraine Management app. You can track your Cefaly sessions as well as Migraine symptoms on the app. You can download information to share with your doctor. The device is more powerful than the OG version *and more stylish). I absolutely love it. It’s not every day that you get to wear a gadget like this on your head, I feel like I am channeling my inner superhero every time I use it. I love how I can switch between Wonder Woman 1984 to the present day Wonder Woman. 

The Verdict

Buy. Cefaly has made a significant difference in my life. The device is easy to use, surprisingly comfortable, and it reminds me to take time off for selfcare every day. If you’re looking for a non-invasive, drug-free treatment option for Migraine, I’d highly recommend giving the Cefaly Connected a try. Your inner superhero will thank you and so will your brain!

The Price

Cefaly Connected retails at USD 424. I had to save up for a whole year to buy my first Cefaly device. I understand that it can be on the expensive side for most people. 

Thankfully, you can pay in installments using Affirm, and they have a 90-day money back guarantee that allows you to try the device and return if it is doesn’t help you. 

You can get 15% discount with my affiliate code CHRONICALLYMEH or link. Cefaly also runs a lot of offers and promotions. Combine my code with their existing promotion (and trade-in your old device) to get a higher discount on your purchase.

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